Welcome to our Resource Room for people living with cancer and their families! Our Resource Room contains patient materials on various topics to which you can easily print and refer.

Guides For You

• Advocating for a Loved One

• Clinical Trials

• Communicating with your physician

• Fundraising Strategies

• How to write a Press Release

• Importance of Patient Groups

• Raising funds through a Media Campaign

• Starting your own Patient Group

Links & Additional Resources

• Cancer Financial Aid Coalition (CFAC)

  CFAC is a user-friendly search tool designed to help people facing cancer locate financial resources. The search database is organized by a coalition of financial assistance organizations, including The Max Foundation, joining forces to help cancer patients experience better health and well-being by limiting financial challenges.

• ASH 2009 Recollections, as told by a fellow advocate

  This article is a summary of the 2009 ASH conference written by a CML survivor and advocate. Note that it is an unofficial account of the meeting. Please follow the link for the English version and click here for the Spanish version.

• iCMLf- International Chronic Myeloid Leukemia Foundation

  The iCMLf is a Foundation established by a group of hematologists with a strong interest in CML with the mission of improving the outcomes for patients with CML globally. The foundation is currently registered as a charitable foundation in England and Wales but their charter is global.

• CML Advocates Network

  The CML Advocates Network is a worldwide virtual network of non-profit organizations supporting patients with Chronic Myeloid Leukemia (CML) and their relatives. The network helps by sharing knowledge and best practice, supporting campaigns, and educating advocates how to build and grow patient groups.

• UICC, International Union Against Cancer

  The International Union Against Cancer (UICC) is the leading international non-governmental organization dedicated exclusively to the global control of cancer. Their mission is to connect, mobilize and support cancer organizations and individuals with knowledge and skills to be effective and their vision is a dynamic global community of connected cancer control organizations, professionals and volunteers working together to eliminate cancer as a major life-threatening disease for future generations.

• Chronic Myeloid Leukemia: An Update of Concepts and Management Recommendations of European LeukemiaNet

  The purpose of this scientific article, published in November 2009, is to “review and update the European LeukemiaNet (ELN) recommendations for the management of chronic myeloid leukemia with imatinib and second-generation tyrosine kinase inhibitors (TKIs), including monitoring, response definition, and first- and second-line therapy.” The study was conducted by key opinion leaders in the field of CML.

• This video which explains how Glivec works in the human body was produced by Novartis can be found in the public domain on YouTube.
  

• CML Earth is a social networking site created by Novartis with the mission of providing members of the CML global community with a place to give and receive support, make valuable connections and share personal experiences.